The following table shows the number of participants and the tools available in each wave::
Participants
| C11 2011-2012 | C11 2014-2015 | C11 2018 | C19 2019-2020 | C19 Subest. COVID 2020 | C11 2021 | C19 2021 | |
| Cohort 2011 (C11) | 4.753 Baseline | 2.528 2nd wave | 1.576 3rd wave | 1.576 3rd wave | – | 4ª wave | 4ª wave |
| Cohort 2019 (C19) | – | – | 3.000 Baseline | 3.000 Baseline | 1.185 Subest. COVID | 2ª wave | 2ª wave |
Tools
| Tools | C11 2011-2012 | C11 2014-2015 | C11 2018 | C19 2019-2020 | C19 Subest. COVID 2020 | C11 2021 | C19 2021 |
| Household composition | ✔ | ✔ | ✔ | ✔ | X | ✔ | ✔ |
| Sociodemographic features | ✔ | ✔ | ✔ | ✔ | X | ✔ | ✔ |
| Cognitive reserve questionnaire (Rami et al., 2011) | X | X | ✔ | ✔ | X | ✔ | ✔ |
| The «Mini-cognitive test» (Lobo et al., 1979) | X | ✔ | ✔ | ✔ | X | ✔ | ✔ |
| Work history and benefits | ✔ | ✔ | ✔ | ✔ | X | ✔ | ✔ |
| Disability assessment (WHO-DAS II), 12 items (Luciano et al., 2010) | ✔ | ✔ | ✔ | ✔ | ✔ | ✔ | ✔ |
| Activities of daily living and instrumental activities of daily living | ✔ | ✔ | ✔ | ✔ | X | ✔ | ✔ |
| Multidimensional assessment of health condition (Salomon et al., 2003) | ✔ | ✔ | ✔ | ✔ | X | ✔ | ✔ |
| Blood pressure | ✔ | ✔ | ✔ | ✔ | X | ✔ | ✔ |
| Walking speed | ✔ | ✔ | ✔ | ✔ | X | ✔ | ✔ |
| Immediate and delayed recall. Consortium to establish an Alzheimer’s disease registry (Morris et al., 1989) | ✔ | ✔ | ✔ | ✔ | X | ✔ | ✔ |
| Forward and backward digit span tests of the Wechsler Adult Intelligence Scale (2008) | ✔ | ✔ | ✔ | ✔ | X | ✔ | ✔ |
| Verbal fluency. Animal naming technique (Rosen et al., 1980) | ✔ | ✔ | ✔ | ✔ | X | ✔ | ✔ |
| Tobacco and alcohol consumption | ✔ | ✔ | ✔ | ✔ | ✔ | ✔ | ✔ |
| Mediterranean Diet Adherence Screener (MEDAS) (Martínez-González et al., 2012) | X | ✔ | ✔ | ✔ | ✔ | ✔ | ✔ |
| Mini-nutritional assessment (Kaiser et al., 2009) | X | ✔ | ✔ | ✔ | X | ✔ | ✔ |
| Global Physical Activity Questionnaire (GPAQ) version 2 (Armstrong and Bull, 2006) | ✔ | ✔ | ✔ | ✔ | ✔ | ✔ | ✔ |
| Presence of chronic conditions | ✔ | ✔ | ✔ | ✔ | X | ✔ | ✔ |
| Urinary incontinence (Espuña et al., 2004) | X | X | ✔ | ✔ | X | ✔ | ✔ |
| Depression 12 months CIDI (Kessler & Üstun, 2004) | ✔ | ✔ | ✔ | ✔ | X | ✔ | ✔ |
| Depression throughout the life course CIDI (Kessler & Üstun, 2004) | X | ✔ | ✔ | ✔ | X | ✔ | ✔ |
| CIDI generalized anxiety disorder (Kessler & Üstun, 2004) | ✔ | ✔ | ✔ | ✔ | X | ✔ | ✔ |
| CIDI panic disorder (Kessler & Üstun, 2004) | ✔ | ✔ | ✔ | ✔ | X | ✔ | ✔ |
| CIDI Suicide (Kessler & Üstun, 2004) | ✔ | ✔ | ✔ | ✔ | X | ✔ | ✔ |
| CIDI agoraphobia (Kessler & Üstun, 2004) | X | X | X | ✔ | X | X | ✔ |
| Threatening experiences (Brugha & Cragg, 1990) | X | X | X | ✔ | X | X | ✔ |
| Use of medical services | ✔ | ✔ | ✔ | ✔ | X | ✔ | ✔ |
| Eysenck personality questionnaire, N, E and S scales (Sandín et al., 2002) | X | X | X | ✔ | X | X | ✔ |
| Stressful life events (Brugha and Cragg, 1990) | X | X | X | ✔ | X | X | ✔ |
| Social participation. Based on the social isolation scale (Shankar et al., 2011) | X | X | ✔ | ✔ | X | ✔ | ✔ |
| OSLO Social Support Scale (OSS-3) (Dalgard et al., 2006) | ✔ | ✔ | ✔ | ✔ | ✔ | ✔ | ✔ |
| UCLA Loneliness Scale (Hughes et al., 2004) | ✔ | ✔ | ✔ | ✔ | ✔ | ✔ | ✔ |
| Suspicion of abuse of the elderly (Pérez Rojo et al., 2008) | X | X | ✔ | ✔ | X | ✔ | ✔ |
| Caregiver’s burden (Zarit, 1980) | X | X | ✔ | ✔ | X | ✔ | ✔ |
| Households in material deprivation (INE, 2019) | X | X | ✔ | ✔ | X | ✔ | ✔ |
| Subjective Socioeconomic Status (Präg et al., 2016) | X | X | ✔ | ✔ | X | ✔ | ✔ |
| Quality of life (WHOQOL-AGE) (Caballero et al., 2013) | ✔ | ✔ | ✔ | ✔ | X | ✔ | ✔ |
| Perceived well-being scale (Cantril, 1965) | ✔ | ✔ | ✔ | ✔ | ✔ | ✔ | ✔ |
| Stress | ✔ | ✔ | ✔ | ✔ | X | ✔ | ✔ |
| Reconstruction of daily life (Kahneman, 2004) | ✔ | ✔ | ✔ | ✔ | X | ✔ | ✔ |
| Sleep quality index (6 items) (Macías & Royuela, 1996) | X | X | X | ✔ | ✔ | X | ✔ |
| Subjective well-being (Diener et al., 2009) | X | X | ✔ | ✔ | X | ✔ | ✔ |
| Brief resilience scale (Rodríguez-Rey et al., 2016) | X | X | X | ✔ | ✔ | X | ✔ |
| Built Environment Self-Reported Questionnaire (CBE-SR) | ✔ | X | X | X | X | X | X |
| Interviewer evaluation | ✔ | ✔ | ✔ | ✔ | X | ✔ | ✔ |
| COVID sub-study questionnaire | |||||||
| Questions about COVID infection | X | X | X | X | ✔ | X | X |
| Social relationships during confinement | X | X | X | X | ✔ | X | X |
| Depression 30 days | X | X | X | X | ✔ | X | X |
| Anxiety 30 days | X | X | X | X | ✔ | X | X |
| Panic attacks | X | X | X | X | ✔ | X | X |
| Suicidal ideation | X | X | X | X | ✔ | X | X |
| Mental health and wellness | X | X | X | X | ✔ | X | X |
| Lifestyles | X | X | X | X | ✔ | X | X |
| Economic aspects | X | X | X | X | ✔ | X | X |
| Proxy questionnaire | |||||||
| Informant Questionnaire on Cognitive Impairment in the Elderly (IQCODE-Short Form) (Jorm et al., 1994) | ✔ | ✔ | ✔ | ✔ | X | ✔ | ✔ |
References
Armstrong, T., & Bull, F. (2006). Development of the world health organization global physical activity questionnaire (GPAQ). Journal of Public Health, 14(2), 66-70.
Brugha, T. S., & Cragg, D. (1990). The list of threatening experiences: the reliability and validity of a brief life events questionnaire. Acta Psychiatrica Scandinavica, 82(1), 77-81.
Caballero, F. F., Miret, M., Power, M., Chatterji, S., Tobiasz-Adamczyk, B., Koskinen, S., … & Ayuso-Mateos, J. L. (2013). Validation of an instrument to evaluate quality of life in the aging population: WHOQOL-AGE. Health and quality of life outcomes, 11(1), 177.
Cantril, H. (1965). The pattern of human concern. New Brunswick: Rutgers University.
Diener, E., Wirtz, D., Tov, W., Kim-Prieto, C., Choi, D. W., Oishi, S., et al. (2010). New well-being measures: Short scales to assess flourishing and positive and negative feelings. Social Indicators Research, 97, 143–156.
Espuña Pons, M., Rebollo Álvarez, P., & Puig Clota, M. (2004). Validación de la versión española del International Consultation on Incontinence Questionnaire-Short Form. Un cuestionario para evaluar la incontinencia urinaria. Medicina clinica, 122(8), 288-292.
Hughes, M. E., Waite, L. J., Hawkley, L. C., & Cacioppo, J. T. (2004). A short scale for measuring loneliness in large surveys: Results from two population-based studies. Research on aging, 26(6), 655-672.
Insituto Nacional de estadística (2019). Riesgo de pobreza y/o exclusión social (estrategia Europa 2020). Indicador AROPE
Jorm, A. F. (1994). A short form of the Informant Questionnaire on Cognitive Decline in the Elderly (IQCODE): development and cross-validation. Psychological medicine, 24(1), 145-153.
Kahneman, D., Krueger, A. B., Schkade, D. A., Schwarz, N., & Stone, A. A. (2004). A survey method for characterizing daily life experience: The day reconstruction method. Science, 306(5702), 1776-1780.
Kaiser, M. J., Bauer, J. M., Ramsch, C., Uter, W., Guigoz, Y., Cederholm, T., … & Tsai, A. C. (2009). Validation of the Mini Nutritional Assessment Short-Form (MNA®-SF): A practical tool for identification of nutritional status. JNHA-The Journal of Nutrition, Health and Aging, 13(9), 782.
Kessler, R. C., & Üstün, T. B. (2004). The world mental health (WMH) survey initiative version of the world health organization (WHO) composite international diagnostic interview (CIDI). International journal of methods in psychiatric research, 13(2), 93-121.
Kocalevent, R. D., Berg, L., Beutel, M. E., Hinz, A., Zenger, M., Härter, M., … & Brähler, E. (2018). Social support in the general population: standardization of the Oslo social support scale (OSSS-3). BMC psychology, 6(1), 31.
Lobo, A., Gómez, A., & Folstein, M. F. (1979). El” Mini-examen cognocitivo” en pacientes geriártricos. Folia neuropsiquiátrica: Revista de psicología, psiquiatría y ciencias afines, 14(1), 245-251.
Luciano, J. V., Ayuso-Mateos, J. L., Aguado, J., Fernandez, A., Serrano-Blanco, A., Roca, M., & Haro, J. M. (2010). The 12-item world health organization disability assessment schedule II (WHO-DAS II): a nonparametric item response analysis. BMC medical research methodology, 10(1), 45.
Macías, J. A., & Royuela, A. (1996). The Spanish version of the Pittsburgh Sleep Quality Index. Infor Psiquiatr, 146(465), 472.
Martínez-González, M. A., García-Arellano, A., Toledo, E., Salas-Salvado, J., Buil-Cosiales, P., Corella, D., … & Fiol, M. (2012). A 14-item Mediterranean diet assessment tool and obesity indexes among high-risk subjects: the PREDIMED trial. PloS one, 7(8), e43134.
Morris, J. C., Mohs, R. C., & Rogers, H. (1989). Consortium To Establish a Registry for Alzheimer’s Disease (CERAD) Clinical and Neuropsychological. Psychopharmacology bulletin, 24(3-4), 641.
Pérez-Rojo, G., Castiello, M. T. S., & Jaquotot, M. T. A. (2008). Aportación española a los avances internacionales en la adaptación lingüística y cultural de un instrumento de detección de sospecha de maltrato hacia personas mayores. Revista Española de Geriatría y Gerontología, 43(3), 180-188.
Präg, P., Mills, M. C., & Wittek, R. (2016). Subjective socioeconomic status and health in cross-national comparison. Social Science & Medicine, 149, 84-92.
Rami, L., Valls-Pedret, C., Bartrés-Faz, D., Caprile, C., Solé-Padullés, C., Castellví, M., … & Molinuevo, J. (2011). Cuestionario de reserva cognitiva. Valores obtenidos en población anciana sana y con enfermedad de Alzheimer. Revista de Neurología, 52(4), 195-201.
Rodríguez-Rey, R., Alonso-Tapia, J., & Hernansaiz-Garrido, H. (2016). Reliability and validity of the Brief Resilience Scale (BRS) Spanish Version. Psychological assessment, 28(5), e101.
Rosen, W. G. (1980). Verbal fluency in aging and dementia. Journal of clinical and experimental neuropsychology, 2(2), 135-146.
Salomon, J. A., Mathers, C. D., Chatterji, S., Sadana, R., Ustun, T. B., & Murray, C. J. (2003). Quantifying individual levels of health: definitions, concepts and measurement issues. Health Systems Performance Assessment: Debate, Methods, and Empiricism, 301-18.
Sandín, B., Valiente, R. M., Montes, M. O., Chorot, P., & Germán, M. A. S. (2002). Versión española del cuestionario EPQR-Abreviado (EPQR-A)(II): Replicación factorial, fiabilidad y validez. Revista de psicopatología y psicología clínica, 7(3), 207-216.
Shankar, A., McMunn, A., Banks, J., & Steptoe, A. (2011). Loneliness, social isolation, and behavioral and biological health indicators in older adults. Health Psychology, 30(4), 377.
Wechsler, D. (2008). Wechsler adult intelligence scale–Fourth Edition (WAIS–IV). San Antonio, TX: NCS Pearson, 22(498), 1.
Zarit, S. H., Reever, K. E., & Bach-Peterson, J. (1980). Relatives of the impaired elderly: correlates of feelings of burden. The gerontologist, 20(6), 649-655.
